- Cooley's Anemia Foundation
 - Funds medical research, patient services, public information, and professional education to combat thalassemia. - Thalassemia.com
- Featuring medical, genetic, psychosocial, transfusion, and resource information on thalassemia.
- Information Center for Sickle Cell and Thalassemia
- By Kenneth R Bridges from the University of Harvard.
- Thalassaemia & Sickle Cell Unit (TASC)
- Leicester, U.K.-based research organization providing educational opportunities, consultancy, and links to support and information services for the conditions of Sickle Cell Anemia and Thalassemia.
- Berloni Foundation Against Thalassemia
- Fight Against Thalassemia, The
- Features personal experience, resources, and Rochester chapter information.
- Sarawak Thalassaemia Society
- Nonprofit Malaysian organization in acting as an informational network and support group for Thalassaemic patients and families.
- Trials & Tribulations of a Thalassaemic Major
- Describes the experiences of a Thalassaemic patient with information about Desferal, Defereiprone, L1, Kelfer, blood transfusions, and life in general
- Thalassemia
- Thalassaemia Society of Pakistan
- Nonprofit organization that educates the public about the disease and ways to prevent it.
- Thalassaemia On-Line
- Provides basic information on the disease and where to find centres for help.
- Beta-Thalassemia Project, The
- Genealogy project tracing the genetic links of thalassemia through Ashkenazic Jewish families.
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